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New Medicine

By: climber54
Mood: Don't know
Date: Jul 24, 2008
Music: None


So I'm packing my things to move next Friday, going through boxes of stuff and following the "If you don't use it, or love it, throw it out or give it away" rule.  I have a huge pile of stuff for Mr.Trashman, I'll be sure to be awake on Monday morning to give 10 bucks to the guy who hauls it to the truck.  Going through old papers, photos, throwing out most of the papers, keeping all the photos.  Then a yellowed clipping from a newspaper comes to hand and it's titled For patients, inhibitors are seen as miracle.  The date is Sunday, December 8, 1996.  Three residents of Bucks County Pennsylvania are quoted regarding the New Medicine and what it means to them, what it has done for them.  Two are men who give their full names and ages, one is a woman who chooses to give a ficticious first name only.  The article speaks of their decreased viral loads and risen T-cell counts.  The woman calls protease inhibitors "a miracle" and indeed they were, they are.  Two weeks after this article I began taking Crixivan and it was the best Christmas present ever even though I felt like crap from the side effects, it was about Hope, it was about seeing a future again.  The most striking comment of all was from the 42-year-old stockbroker who said "My whole focus now is not so much to worry about the disease, but to reconstruct my life."  I think that's what we are doing here at The Tribe.  Reconstructing a life isn't a one-time all-out effort & then you're done, you're fixed, it is ongoing and it is work.  And as in all work, it is best done with co-workers, with help.  With community.   Let's help each other out here, like it or not we are The Different.  Sometimes I pity folks whose biggest crises is finding the money for a new muffler or worrying whether they can afford new stuff to replace their old stuff (that works just fine, by the way).  Once you stare into the Abyss and find it staring back at you, it's impossible to go back to that shallow place where things and minor events matter so much.  Listen to each other. Learn. Be patient, and for God's sake help somebody out......-CB on a sunny Thursday afternoon-


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VIEWING 1 - 3 OUT OF 3 COMMENTS

July 24, 2008, 11:11 pm
December 8 is my birthday, but not 1996 LOL.  I won't even tell you the year!  Good luck with your move.  I hope you find peace and love.  Stay blessed.  M'lady

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July 24, 2008, 10:33 pm

climber, i have file folders filled with "hope" (articles, affirmations, readings from back in the dark days of no hope..."why i survive aids", stories about long term survivors, any scrap of *anything* that would give me an ounce of hope that i could keep my body in good enough working order til new meds were approved) and folders full of things from those earliest days when an actual ray of real hope appeared in the spring of 1996 (protease inhibitors). "don't close that coffin yet, folks!" just in the knock of time. like getting that last minute pardon from the governor. i even have a copy of an "FDA Consumer" magazine that i was featured in during those glory days...an article about people being pulled out of the grave (the "Lazarus effect")

i remember a sectional i attended at national hiv convention  LA in 1997. The hope and excitement of the presenters and the 1500 participants was almost palpable. There was so much good news flying everywhere: news of hospice closings due to the drop in AIDS-related deaths, life insurance companies now offering policies to infected individuals (which many had stopped doing), HIV being viewed as a chronic, manageable illness rather than terminal, people returning to work...even talk of possible eradication of the virus from the system.

One sectional at the conference addressed "Post-AIDS Survivor Syndrome," which detailed the difficulties people experienced since protease inhibitors came on the scene. For many, the good news was: "You're gonna live." The bad news was: "You're gonna live." Many people had planned on dying soon and had cashed in their life insurance policies, maxed out their credit cards, and had gone on disability. They were now faced with financial disaster and the challenge of planning for a future, now that they had one. Many were struggling to get off of disability and back to work. Many had no job and no job skills. Many struggled with survivor guilt, wondering why they are still alive while others died not having the chance to survive as well.

it is ongoing and it is very tough work to begin again. but thank God we were given a second chance to begin again. maybe this time we'll be awake and alive, eh? thanks for this, climber 

 



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From: czojeff
July 24, 2008, 3:34 pm

i feel my worth is measured in how much and how often i help those less fortunate than myself.

in saying that it is kind of weird because i'm coming from a position of being a home less addict a few years ago to "WITH THE HELP OF MY FAMILY" i now own my home.

it is a white trailer, (does that make me white trailer trash???...lol) and while i don't have to pay rent, i am still responsible for the monthly bills. it took me a while to learn how to manage my money and be responsible, but now it is so cool to be able to offer a place to stay to friends when they need it.

and money for a new muffler? what the hell is that? i like the noise of my car. it lets people know i'm coming and gives them a chance to hide and pretend they aren't at home...lol

good luck in your move, just don't throw too much away or you will find "i sure could use that....i threw away"...lol

jeff



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