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having a life

By: cuucuu
Mood: Tired
Date: Jul 24, 2008
Music: Amazing Aerosmith


  well i have been existing with this disease for 21 years now.seems things are more of a struggle now ,than it was 10 years ago.my health hasnt changed all that much over the years.my numbers are still below 200.i just wonder how much longer i can go on.some days are so discouraging.i have turned my life around 180 degrees.i have a life.i am having a really tough time with my drs.some days i cant even write my name let alone remember it! they dont seem to take any of my concerns seriously. over time, i have become so in tune with my body, knowing when something really isnt right.but,these drs.who would not recognize the person today with who i was twenty years ago, are of the impression that i am activily using, which i am not.theyre attitudes have gone so far down i dont know if they can objectivly treat me.i am beginning to absorb their bad vibes.really almost starting to think i am not worth treatment and that is SO wrong.i am a decent soul with a disease that will get me eventually.but i will not let it rule my world.i am not this disease, i am anita,a woman who does deserve the good things in life.including being treated for this disease.not put aside because of what they assume.even when i was an active addict,i dont really remember drs. having an attitude that these seem to have.it just seems so wrong to me.i get so emotional after having to battle with them,crying, cussing,and plain angry.ifeel like i just cant go on anymore,am even doubting myself and my worth.my mind isnt always right on the money,at all times,but whose is?i am at a loss these days.i dont have too many people that i can talk to let alone relate to what i am going through.i have been away from my hometown for ten years now.up in mass,there are all sorts of places one can go to talk,get services and friends going through the same things.here in fl. it is a different planet!to let people know what is going on would not come out well at all.they would run the other way most likely and that is really scary for me.i have good people in my life now, but,would they still be there knowing what my situation is??too scared to find out.well writing this has helped me some.i hope there is sombody out there who may have some suggestions on what i can do to change the direction my mind seems to be going.i am almost immobilized by my fears and frustrations some days.i believe the mind can make us well but if there are folks just tromping on ones thoughts and beliefs it gets so hard to stand by those ideals.i have lost lots of people to this disease and i have refused to let it rule my world but it is getting harder and harder as time goes by. what did popeye say I AM WHAT IAM I IS WHAT I IS TAKE ME AS I AM OR DONT TAKE ME AT ALL? i  try to keep those words at the front of my sick mind gives me the strength to keep on.  later good people.


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VIEWING 1 - 4 OUT OF 4 COMMENTS

July 24, 2008, 11:13 pm
New doctor right away!  Innocent

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From: LoriB
July 24, 2008, 6:20 pm
Exactly find a new doc.

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From: piks7275
July 24, 2008, 10:31 am
Find another Doctor that treats you as a Human.Hang in there and God Bless you.

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From: lorrie
July 24, 2008, 6:54 am
Smile Smile

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